This is incredibly cool! Thoratec Corporation, which makes the Heartmate II device that I currently have implanted announced that they have now hit the 10,000 milestone of lives forever changed through the implantation of these devices. Many of my online fellow LVAD-ers are featured in this video (Shout out to @LVADone & @VEGASLVAD !!). It is definitely [...]
Archive for the ‘Daily Life’ Category
10,000 Heartmate II LVADS Have Now Been Implanted
Posted: April 20, 2012 in Daily Life, Health, Heart, LVAD tips & resources, My New NormalTags: #LVAD, @MrChristopherL, cardiomyopathy, congestive heart failure, heart, heart health, heart pump, lvad community, Thoratec Corporation, University of Minnesota
The Waiting Game (Life on the Transplant Waiting List)
Posted: April 17, 2012 in Daily Life, Health, Heart, My New NormalTags: #LVAD, 1b status, @MrChristopherL, cardiomyopathy, congestive heart failure, donor heart, heart, heart health, heart transplant, status 1a, www.unos.org
Back in October of 2011, when I was in the hospital, I qualified to get on the waiting list to be blessed with the gift of a donor heart when one became available. There are so many contributing factors that can cause you to not be a candidate for a spot on the list. They [...]
My Interview on the Christopher Gabriel Show on WDAY Radio in Fargo, ND
Posted: March 6, 2012 in Daily Life, Health, Heart, My New NormalTags: #LVAD, cardiomyopathy, Christopher Gabriel, congestive heart failure, Dick Cheney, heart, heart health, heart pump, heart transplant, ICD, Thoratec Corporation, University of Minnesota, WDAY, WDAY AM
Christopher Gabriel, his wife and family have been great friends of ours over the years, His talent for Acting and Storytelling are brought to bear perfectly in the ”Theater of the Mind” known as broadcast radio. I was honored to be asked about and to share my current phase of life with Heart Issues and a Left [...]
OY! What a Pain in my Foot!
Posted: February 21, 2012 in Daily Life, Health, Heart, LVAD tips & resources, My New NormalTags: #LVAD, @MrChristopherL, avoiding purine rich foods, cardiomyopathy, cochisine, congestive heart failure, diet, diuretics, foot pain, gout, gout and diuretics, gout treatments, heart, heart health, heart transplant, joint pain, nutrition, purine rich foods, purines, sudden onset gout
Gout is one of the oldest diseases in the medical literature; it has been around since the first recorded case in the time of the ancient Greeks. I always thought that it was one of those “old people” diseases often depicted in comedic sketches or on Saturday Night Live. I clearly didn’t know that [...]
100 Days and counting….
Posted: January 16, 2012 in Daily Life, Health, Heart, My New NormalTags: #LVAD, cardiomyopathy, heart health, heart transplant, lvad community, milestones
Yesterday marked 100 days of life with a LVAD. Boy has time flown. It seems like I just came home from the hospital weeks ago, but I am thrilled with the progress so far and this milestone. So what has having a LVAD meant to me for the last 100 days? Well here is a [...]
The LVAD Leash – Life at the end of a 30 foot cord
Posted: January 11, 2012 in Daily Life, Heart, LVAD tips & resources, My New NormalTags: #LVAD, cardiomyopathy, heart health, heart pump, heart transplant, lvad leash, LVAD power cord
Part of my new normal of being powered by electricity involves battery packs during the day to be portable, but each night, I eventually switch over to wall power which involves a 30 foot cord. This cord allows me some freedom at night (about 30 feet of it). The wall unit is in our bedroom, [...]
I don’t always have the answer, nor do I need to.
Posted: January 10, 2012 in Daily Life, Health, Heart, LVAD tips & resourcesTags: #LVAD, @MrChristopherL, cardiomyopathy, Facebook, heart, heart health, heart pump, heart transplant, Linkedin, lvad community, support groups, Twitter, University of Minnesota, YouTube
If you know me personally, you know how hard that declaration is for me. I almost always have the answer (or at least I claim to). Ever since the first grade I was quick to raise my hand and deliver an answer, even if it was the wrong one. I would get all red in [...]
How do you Explain your LVAD to Younger Children?
Posted: January 6, 2012 in Daily Life, Heart, LVAD tips & resources, Multiple Children, Supergirl, TwinsTags: #LVAD, Build-a-Bear Workshop, cardiomyopathy, Dad, heart, heart health, heart pump, heart transplant, Heartly the LVAD Bear, helping daddy, LVAD Teddy Bear, raising multiples, raising twins, Supergirl, teaching younger children, Thoratec Corporation, undefined, Wonder Twins, Wonder Woman
Back in September of 2011 when I first found out that I was going to need a LVAD implanted to keep my heart going until a donor heart was found, my wife and I barely understood what exactly this device would entail, much less how we were going to explain it to our children (9-year-old [...]
LVAD Tips & Resources – Holster Shirts
Posted: January 6, 2012 in Daily Life, LVAD tips & resourcesTags: #LVAD, Bosco LVAD vests, cardiomyopathy, Dick Cheney, fishing vests, heart, heart pump, Heartmate Go Gear, holster shirts, photography vests, shooting vests, tactical shirts
One of the first questions/challenges facing LVAD implant recipients, is how to comfortably carry around the battery packs and controller unit during the day, to allow as much mobility as possible. I have been told of several solutions, from Photographer/Hunter/Fishing vests with more than enough pockets to store all of the equipment and wallets, [...]
I Knew I was Being Transformed….I Just Didn’t Think it would be Into a Cyborg!
Posted: January 4, 2012 in Daily Life, Faith, Health, HeartTags: #LVAD, bi-valve pacemaker, Christian, Christianity, Comic books, Cyborg, Cyborg Superman, Dad, Faith, faith journey, God, heart, heart health, heart pump, heart transplant, hobbies, ICD, Locutus, Medtronic, pacemaker, Superdad, Superman, Thoratec Corporation, Vintage Comics
OK, so let’s get this out of the way; it’s no big secret that I am a Christian. No, you don’t have to be one also to read this blog. I will try to not be one of those that like to “vomit” their Faith on someone. I won’t try to convert you or brainwash [...]